One YEAR!

 It is amazing what this year has been like.  So much healing, adjusting, many new medical issues to confront….but at one year after almost draining the Medicare federal funds! I feel like perhaps I have new life ahead of me! (Lucky for ME and due to having had the surgery). I discovered also that my obstructive and central sleep apnea is pretty severe (check this EDS ppl with the surgery and then a smaller pharyngeal area) and that has been a big issue.  Bipap has dealt with that at least on the first level until further testing. 

From an emotional standpoint I am relieved I can wait for the lumbar sacral surgery and any further cervical surgery at this point. Likely L/S first and get that stabilized then see how things go.  I will soon be taking some osteoporosis meds and that should help things heal in my cervical region also. 

I am truly fortunate to be alive at this point in my life with EDS! I would like a nice vacation from all of this to be quite honest. But this is my life and I am fortunate to be able to be walking at all. Or alive.  I am in much less pain (only 1-2 tramadol and sometimes none)!  Yes it’s true I am not biking all over Europe or hiking the Olympics but I have DONE those things.  

Special forever gratitude to Phil (what an amazing partner!) and my family and friends for all their love and support.   Sorry I scared all of you! HAHAH 

Added Edit.  Ides of March but I was able to sing again w the Hildegard group last night.  One hour.  Very sore throat but at least I was able to try. Maybe I can get some semblance of a voice back! 


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